Saturday, 19 May 2012

Home Again

Some pictures of Daphne’s time in the ICU. 

It was very difficult to see Daphne on a ventilator again, but fortunately she wasn’t on it for long this time. 

Soon she was her regular happy self. 

She was showing off all her new moves to the ICU staff in no time. 

Last picture in the ICU before being sent up to the ward!

Wearing the dress I made for her.

During her time on the ward Daphne did great.  The endoscopy did not show where the bleeding came from.  We were told the scope is unable to go all the way through the small intestine.  A way to see the small intestine would be to have Daphne swallow a capsule with a tiny camera in it.  Immediately I wanted to do whatever we could to find out what happened.  However we were told with all of Daphne’s surgeries there was a risk that the capsule could get stuck.  If this were to happen, for her, getting it out would require quite a major surgery.  Instead, we should first try a dissolvable capsule to see if she could pass it.  However, that could not guarantee that the second real capsule wouldn’t get stuck.  Also, she would have to be put under each time to get the endoscope to place the capsules inside of her.  On top of that, many of the things that could have caused the bleeding would not be seen if she wasn’t actively bleeding which she wasn’t anyway.  With all these negatives we decided not to put Daphne through extra procedures from which there seemed little to gain. 

Rowan playing foosball on one of her hospital visits. 

The sisters love each other so much!

Daphne was observed for a few more days and then she was discharged on Wednesday.  Since she has been home she has been very happy.  She is now a crawling baby!  She also loves to practice her standing. 

Rowan enjoying one of her favorite toys from McDonalds.  This thing is so annoying it should come with a warning label for parents.  On the bright side, when the battery finally died she didn't get upset. 

Daphne also loves to eat now.  I have been so used to having an NG tube fed baby that sometimes when she got cranky I would really be confused as to what was wrong with her.  After trying to get her to nap, to play, a clean diaper I would finally realize she might be hungry!  I’d place her in the high chair and she would just eat and eat happily.  She really loves cinnamon buns!

As for Rowan, she has actually been a bit sick lately.  Last Thursday her glands in her neck were swollen.  This Wednesday she had been throwing up a bit.  Yesterday she had a fever and was throwing up again.  The weird thing is that in between those events she seems to recover almost completely.  She has seen a paediatrician twice about this.  Today was another great day for her, she was full of energy and happy all day, although she did go to bed earlier than normal. 

This was Friday afternoon when Rowan wasn't feeling too good.  She really wanted to sleep in the patch of sunlight on the hardwood floor.  So I brought her a pillow and a blanket.  She slept there for 2 hours!  Then I carried her up to our bed. 

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