It finally feels like summer is really here. We have been busy out and about it seems. We love visiting “The Horsie Park” also known as Fort Edmonton.
We have also been to the zoo.
We have also been spending time in the backyard.
Today we did the Stroll for Liver at Emily Murphy Park. We had a great turn out. A big thank you to all those who supported “Team Daphne!” We raised over $3000 and had a great morning outside today.
As for Daphne she has been doing great recently. She is an absolute delight! It seems since she has become such a good crawler she is so much more content. This week she has also gone from continuous feeds to bolus feeds. That means instead of having her formula pumped into her all day, its now done in 4 meals during the day and 5 hours at night. Its so much nicer letting her crawl around without being connected to a pump all the time.
Some very important changes were made in her meds this week as well. It turns out one of her meds was given to her in liquid form which means it had sorbitol in it. Turns out sorbitol is a laxative and should never be given to babies. I am so glad they discovered this mistake and corrected it. The med has been changed to the powdered form. I am hoping her electrolyte issues resolve now. Changing a few less diapers a day will also be a bonus!