Here is a quick run down of Christmas. This was a very special Christmas for
us. This was Daphne’s first Christmas at
home! It’s amazing to think how far she
has come this last year. Last Christmas
Daphne was in the PICU. It was Boxing
Day that they took her off the ventilator.
This Christmas she was busy helping us decorate.
She also has quite the appetite and can usually be found eating.
Daphne is definitely not a wimp when it comes to Edmonton winters. She loves any opportunity to go out!
Here is a video of Daphne and her cousin Meaghan hanging
out.
Here are some pictures of the girls enjoying Christmas
festivities.
This is Christmas Eve, the girls are very eager to open
presents. We have never had such an easy
time getting Rowan to eat everything off her plate, since she was told there
would be no gift opening until she was done!
They were sure tuckered out at the end of the night.
In the morning there was another gift-opening. They were sure delighted! Rowan kept saying “This is the best present
ever!” And “That’s what I always wanted!” Except for when she opened her present that
was a book, “That’s not what I wanted.”
I think she takes after her father in that department.
The very next day was another gift-opening at her
grandparents’ house. It was very special
because this was Daphne’s first time in Bow Island.
Enjoying some Granddad time!
Medically, Daphne is doing fine. Toward the middle of December, Daphne’s
hemoglobin kept dropping. We were
worried that she was having a bit of internal bleeding. Her aspirin was discontinued and we started
giving her iron. She was also scheduled
to have an endoscope done. I was very
uncomfortable with having it done so quickly.
I preferred to wait and see if the changes in her meds would work before
having a procedure done, but we went to her scheduled endoscope anyway. Daphne had quite a stuffy nose at the time
and the anaesthesiologist was also uncomfortable with it. GI was consulted and it was decided to put
off the endoscope. I felt very relieved
about this. Her hemoglobin since then
has improved and the endoscope hasn’t been mentioned again.
We still hung out in the day surgery ward all morning and
a nurse seemed quite surprised that despite having nothing done the entire
process took so long. I told Brad this
later and we joked that it must have been her first day working in healthcare! We have definitely learned a great deal of
trust and patience when it comes to medical care. We have always felt that everyone has truly had
Daphne’s best interest in mind, so when a decision takes a while to come to, we
trust that is because it was a difficult decision to make. We have also had our share of emergencies
with Daphne where there was no hesitation or delay in giving her the best care
possible. So whenever we are stuck
waiting around for things, I can’t help but feel blessed that we are not in a
life or death situation that makes everyone drop what they are doing to get to
Daphne.
As for my Christmas, I had the best present ever; my
whole family at home together, happy and healthy. Daphne and Rowan are such super sweet
girls. They are both very active,
climbing all over everything! Rowan is
very loving. Sometimes at night time she
tells me “I love you soooo much. I love
you too much! I am never letting you go
to work again.” Daphne is also very
sweet. She loves to cuddle and carry her
dolls around. She feeds them and insists
I put real diapers on them. When I come
home from work they are always so happy.
They usually scream with glee.
Our house is quite a noisy one, but it is a joyful noise.
great post vicky!
ReplyDeleteloved the train set. its good to get a feel for your christmas. the girls snuggling with grandpa is an awesome moment.
i also appreciate your perspective on medical waits.
marc