This week was another good week overall. Her Monday appointment with the transplant team went very well. Daphne is just under the 50th percentile for height and weight (after subtracting 0.7 kg for fluid in her tummy.) The dietician was very encouraged by this. She said that with most babies with biliary atresia that is not the case at this point.
Some thing we have been struggling with this week is Daphne’s broviac. It is leaking quite a bit of fluid. Daphne just isn’t clotting as she should. We have been getting the dressing changed often. We also had some trouble with her ng tube. Her formula was just too thick for the tiny tube. This was solved easily with a larger gage tube. Putting in Daphne’s ng tube sure does cause me a lot of stress. She has pulled it out a number of times and each time I reinsert it seems more stressful than the last. Daphne just fights it more and more each time.
On a happier note, we had two milestones this week. Daphne got her first tooth. She has her top, right canine. I’m hoping she gets the top left canine next, for symmetry and for the Halloween costume possibilities! Even more exciting news is that on Thursday she scooted on her bum for almost a metre! Now we are going to need to get serious about baby proofing the house. Not exactly an easy task with a three year old who loves to collect tiny things such as marbles, pebbles and silly bandz (elastic bands.)
Here are some pictures of Daphne’s dresser and a quilt given to Daphne from our church with a very special Bible verse on it. I’ve also included some pictures of us this Thanksgiving long weekend.