We have had a pretty quiet week at home. Daphne had her first post-transplant appointment with the transplant team on Monday. She will be having those weekly for a while. Tuesday she saw her paediatrician. Another appointment we will keep on a weekly basis for a while. Today was busier though. Daphne saw an occupational therapist for a swallowing assessment. Then we were given a new pump to use with feeding Daphne. I am very happy with this new pump. It doesn’t require gravity at all, the pump and bag all stay in a little back pack and it has excellent battery life. Now we aren’t stuck moving a pole around the house or tethered to an outlet all day. I love it. A minor setback today was getting a call that Daphne’s potassium was high again. A high result could be coming from pulling the blood from her broviac, so we were told to go to a lab and get a peripheral blood draw instead. It took two pokes, but we got the blood fairly quickly.
I thought I would add some pictures from this week.
|Rowan enjoying the snow we've had!|
|Warming up inside with Welsh Cakes and Hot Apple Cider.|
|Daphne's usual happy self!|
|Brad helping Daphne do some of her exercises.|
|Rowan and Daphne playing drums.|